This episode explores a mother whose child has been diagnosed with Sturge-Weber Syndrome, a rare neurological and skin disorder characterized by a facial birthmark and can also include, neurological abnormalities.
In this episode, Mallory Kilgore will take us through her family’s journey, from the initial signs and diagnosis to the everyday challenges and triumphs they encounter. She’ll share her insights on navigating the healthcare system, managing treatments and therapies, and finding the right support. We’ll also explore the emotional and social aspects of living with Sturge-Weber Syndrome and how it has impacted their family dynamics.
